Over
30 million Baby Boomers provide countless hours of
assistance to elderly parents at no charge. It is
estimated that, using average hourly wages, the total
amount of this uncompensated care is comparable to
the entire Medicare budget. For the estimated 7 million
Boomers who provide long distance care, actual out
of pocket expenses amount to almost $5,000 per month.
For caregivers who have, or are considering leaving
the workforce to care for an ailing parent, the costs
are even greater – over $650,000 in forfeited
salaries, benefits and pensions. |
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This
stark economic reality shows only one dimension of the price
caregivers pay for this act of love.
Caregivers pay with losses that extend well beyond their
bank accounts. They often forego the activities that bring
joy and richness to their lives, like meeting friends for
dinner, or going out to the movies or taking family vacations.
They pay with their time, the loss of professional opportunities
and the erosion of personal relationships that result in
isolation.
Sometimes,
otherwise healthy loved ones need a short dose of care as
they recover from an acute medical episode like a broken
leg. Usually loved ones are on a path of steady decline
with cascading assistance needs. Some caregivers sacrifice
large chunks of their own lives as they help their parents
and other family members and friends peacefully make their
transitions. Caregivers can pay with their own health and
well-being. In fact, we have evidence that some caregivers
pay for their acts of care with their very lives.
You can decrease the personal and economic costs of caregiving.
This means proactive planning rather than reactive responding.
Planning saves money. You know this as you reflect upon
your experiences of going to the grocery store with and
without a shopping list. Planning also minimizes personal
wear and tear and decreases stress. You will feel much better
when you know your options and develop back-up plans before
you jump into a challenging project.
5 Tips to Decrease the Cost of Caregiving:
1. Begin the conversation today. We have tremendous cultural
resistance to the recognition of aging, disability and death.
Just as the first few steps uphill are the hardest, so,
too, you may meet the greatest resistance simply starting
the conversation about their possible need for care. Say
today, “Mom and Dad, it would be great if you lived
forever, but the discovery for the fountain of youth is
nowhere on the horizon. What thoughts and plans do you have
about enjoying your golden years?”
2. Create a plan. Talk with your parents about their ideal
plan if they are no longer able to care for themselves.
Then, start to work toward that proactively. Investigate
long-term care insurance. Draw up the appropriate legal
documents. Find out who would make medical choices if they
were not able to make them on their own, along with some
guiding principles for the choices. You can anticipate and
limit parental resistance by saying, “Mom and Dad,
I just got back from the lawyer’s office signing my
will and durable medical power of attorney. I’ve asked
Mitch to make my medical choices if I cannot make them myself.
Just so you know, if I were in vegetative state, I wouldn’t
want to be maintained on a machine. You probably already
planned ahead too, right?”
3. Use personal and community resources. Make caregiving
a family job to which each member contributes. Even children
can make grandma’s life special with drawings and
phone calls. Identify services that make your job as a caregiver
easier. If you and your parents live in the same community,
check with friends and neighbors and local organizations
to learn about services and resources that will make your
job easier. You say, “Mom has just moved in with us,
and she wants to ‘find a card game with the girls.’
Do you know of any senior centers that have social events?
How about transportation?”
We’re a mobile society and millions of caregivers
live more than an hour away from their parents. Executive
William Gillis learned from his own personal experience
how challenging it is to identify community resources from
afar. As he was carving the path that ultimately led his
on-line portfolio management service, he became the caregiver
for his father. Talk about mixed emotions! Professionally,
he was introducing a service that let millions manage their
investments with one click of a computer mouse. Personally,
he was investing untold hours just to find one bit of information
to help his dad.”
As with so many innovators, he used his personal and professional
experience to launch Parent Care (www.parents-care.com),
a service that he wished would have made his life as a caregiver-at-a-distance
easier.
3.
Gather cost-savings tips. This might mean something as simple
as ordering generic medication or regularly inquiring about
senior discounts. But, most cost savings opportunities aren’t
as obvious. Mr. Gillis found, for example, that some states
will pay for phones for hearing, visually or mobility limited
seniors or fund home safety improvements. He said, “We’ve
invested heavily to locate time and money saving resources
that most would have difficulty finding. I made it a personal
mission to help other caregivers avoid some of the costs
and frustration I encountered.” You don’t have
to re-invent the wheel. Tap into the resources others have
collected.
4. Take care of yourself. You will be able to provide the
best care as a caregiver when you’re at your best.
Get good nutrition, enough sleep and regular exercise. Manage
your stress and do a little something every day to nurture
your soul. Understand that you are at increased risk for
anxiety, depression, and weakening your immune system. Talk
to your doctor if you see worrisome signs such as problems
sleeping, changes in appetite or loss of interest in activities
you enjoy.
Despite the costs, most caregivers say that they received
much more than they gave. Most say they would do it again,
and many do.
Sometimes the question is not the personal cost of caregiving;
it’s the value that you bring to the lives of others
that matter at the end. What personal cost are you willing
to pay for the privilege of helping those who welcomed you
into the world to enjoy their golden years and travel the
road of illness with love and dignity?
About
The Author
Dr.
Vicki is a board-certified surgeon and Clinical Instructor
at the University of Washington School of Medicine who left
the operating room to help caregivers and patients take
the most direct path from illness to optimal health. Want
more tips about caregiving? Get your free report “Caring
for the Caregiver” by emailing Dr. Vicki Rackner today
at DrVicki@DrVicki.org
and be sure to check out her regular column with the Johnson
& Johnson Consumer Products Group’s new caregiver
web site http://www.strengthforcaring.com/
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